Isobel & Abigail

Downs Syndrome in itself is not rare, however, the odds of having identical twins with the condition is around 2,000,000 to 1.  When a diagnosis is given, the way it is delivered can often have a lasting impact. 

“When we were told our beautiful little babies had Down’s Syndrome they were several weeks old.  The consultant asked us into a room and the first thing he said was he was sorry.  It is those words that have stuck with us more than anything else.” explained Jodi, the twins mother.

There’s a lot of negativity around the condition with the focus often being around what children with Down’s Syndrome can’t do.  Isobel and Abigail are full of life and happiness.  Their characters are very different and it is a joy watching them together.  At 3 years old they may have been slightly slower in achieving their milestones and their speech is limited, however, this in no way has held them back.  They are really good at signing and spend hours dancing along to Singalong videos.

A trip out with the girls takes ages, not because of any difficulties in getting about but because they are constantly being stopped and chatted to by strangers who are enthralled by their happy nature.

Their parents were determined to look at the positive aspects of their condition and established Twincess.  It is a charity there for you if you’re expecting, or have a child with DS and want to hear a parent’s perspective.  They believe strongly that Down’s Syndrome is not an illness. It is nothing to be ashamed of, pitied or looked down upon – despite an extra chromosome, people with Down’s Syndrome are no different to anyone else. People with DS, and those around them, are very proud of who they are.

Find out about some of the other children taking part in the Rare Project by clicking here.

To visit Twincess click here.

If you would like to know more about The Rare Project email ceri@samebutdifferentcic.org.uk if you would like to take part.

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