Rare Beauty

Same but Different is a not for profit organisation that uses the arts to raise awareness of disability and counteract prejudice.  We are currently highlighting the people behind rare conditions.

Rare Project on display at the Senedd, Cardiff (Photo courtesy of Genetic Alliance)

Rare Project on display at the Senedd, Cardiff (Photo courtesy of Genetic Alliance)

In the Rare Project we used beautiful portraits to introduce people to children and adults who have rare diseases by way of an online gallery and through exhibitions at venues such as the Senedd, Techniquest, The Heath Hospital in Cardiff and Theatr Clwyd in North Wales.

The Rare Project has had coverage in over 21 countries including America, Australia, France, Germany, India, Brazil and UK.  Through these articles we have had an estimated reach of over 4.5 million people in the last 4 months alone.  We have had supportive emails from around the world and many more people are currently on the waiting list to take part.

What is Rare Beauty?

Rare Beauty will build on the huge success of the Rare Project and introduce the wider rare family i.e. those who are affected by rare disease such as family, GP’s, Consultants and Teachers. 

We will use photographs to create stunning images of everyday scenes that the person with a rare disease finds themselves in, for example, meeting with the consultant, having treatment, going to GP appointments, the researcher working on treatment.  The juxtaposition will be that whilst these settings by their very nature are usually sterile, uninviting locations, we will create beauty as the patient with a rare disease and others involved (consultant etc) will be wearing couture clothing.  

They will make a powerful statement that draws the viewer in to know more.  Each image will be supported by a series of articles explaining how rare disease affects each individual.

The Rare Beauty project will be displayed in an online gallery and in exhibitions at high profile venues, including the Houses of Parliament.  Each image will be supported by a series of articles explaining how rare disease affects each individual.  For example, the consultant will explain about how they, as a person, deal with the unknown and will give a unique insight into the complexity of treating people with highly rare conditions.  Parents will talk about the impact on them and their wider family.  Through these powerful images and the stories of those affected our aim is to create an impact not just within the rare disease community but within mainstream society too.

We envisage the publicity surrounding this project to be even greater than the Rare Project.

For further information, if you would like to take part or if you are an organisation who would like to be involved please contact us via email on ceri@samebutdifferentcic.org.uk or please complete this form.

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