To mark international Rare Disease Day, Rare Disease UK will be hosting Parliamentary Receptions across the UK.
Our reception in Wales, hosted by Darren Millar AM the Shadow Minister for Health and Social Services, will be taking place in the Welsh Assembly (The Senedd) on Tuesday 23rd February between 6pm and 8pm.
Alastair Kent OBE, Chair of Rare Disease UK and Director of Genetic Alliance UK
Dr Andrea Edwards, Clinical Director of the All Wales Medical Genetics Service
Ceri Hughes, Parent of Isaac who has the rare condition Moebius Syndrome
We will also have an exhibition with the work of one of our speakers, Ceri Hughes who runs 'The Rare Project'.
Rare Disease Day provides the rare disease community across the world with the opportunity to increase awareness of rare diseases and highlight this public health priority to government and health departments. It is recognised in countries all around the world and 2016 marks the ninth year that the international rare disease community celebrates Rare Disease Day.
Tuesday, 23 February 2016 from 18:00 to 20:00 (GMT) - Add to Calendar
National Assembly for Wales - The Senedd Cardiff, South Glamorgan CF99 1NA GB - View Map
To find out more about the event, or to register, please click here.