Ceridwen Barkley Photography — Blog posts for Same but Different

Phoebe - Ehlers Danlos Syndrome

Ceridwen HughesAugust 11, 2018Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, sensory issues, sleep disorder, non-verbal, severe learning disability, PhoebeComment

Jake - Angelman Syndrome

Ceridwen HughesJuly 10, 2018angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability, Jake 2Comment

Holly

Ceridwen HughesMarch 16, 2016Holly, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Rare Project, rare disease, GA1, glutaric acidura type 1 Comments

Lachlan

Ceridwen HughesFebruary 21, 2016Lachlan, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Rare Project, rare disease, Periodic Hypothermia Comments

Nina

Ceridwen HughesFebruary 20, 2016Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare disease, Nina, Abnormality in Adam 17 Gene, extreme photosensitivity Comment

Alex - GA1

Ceridwen HughesFebruary 16, 2016GA1, glutaric acidura type 1, Alex, Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project, Same but Different Comments

Eddie

Ceridwen HughesFebruary 12, 2016Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project, Same but Different, porencephalic cyst, porencephaly, neurological disorder, corticol visual impairement, west's syndrome Comments

Alex

Ceridwen HughesFebruary 9, 2016Leigh's Disease, idiopathic intracranial hypertension, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Alex, Rare Project, rare disease Comments

Percy

Ceridwen HughesJanuary 31, 2016Prader Willi Syndrome, Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare diseaseComment

James

Ceridwen HughesJanuary 27, 2016Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare disease, inherited metabolic disease, coffin lowry syndrome, learning difficultiesComment

Jake

Ceridwen HughesJanuary 17, 2016angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability Comments

Katja

Ceridwen HughesJanuary 12, 2016moebius syndrome, Katja, Same but Different, Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project Comment

Mari

Ceridwen HughesJanuary 8, 2016WAGR syndrome, aniridia, Ceridwen Barkley Photography, Same but Different, Rare Project, Wilms tumour, bowel malrotation, rare disease Comments

Grace

When Grace came into the studio to take part in the Rare Project she was an absolute delight and loved showing me her dolls and toys. Her smile and bubbly personality hides the fact that at such a young age she has already been through so many challenges.