Tayen Coppard
Tayen Coppard
In this episode we will hear from fifteen year old Tayen, who lives with Hypohidrotic ectodermal dysplasia, which is 1 of about 150 types of ectodermal dysplasia. Most people with hyperhidrotic ectodermal dysplasia have a reduced ability to sweat and struggle to regulate their body temperature, which is one of the symptoms Tayen has to manage.
You can also read more about Tayen in issue 2 of Rarity Life magazine