About

23.02.16 mh Rare Disease Day 9 s.jpg
 
 

We established Same but Different because…

Same but Different was established by photographer and marketing consultant Ceridwen Hughes (Ceridwen Hughes Photography).   This organisation is personal to Ceridwen as her son, Isaac, has a rare syndrome called Moebius.  From the moment Isaac was born she recognised that people made assumptions about him because of the way he looked and behaved.  Having met many parents over the years who felt the same frustrations, she decided to use her skills to raise awareness of the people behind the conditions and counteract prejudice.

The stats…

1 in 17 people, or 7% of the population, will be affected by a rare disease at some point in their lives.  This equates to approximately 3.5 million people in the UK and 30 million people across Europe.  There are between 6,000 and 8,000 known rare diseases which means collectively they affect a considerable number of people.  (Source: Rare Disease UK). 

acceptance…

As awareness around a condition grows so too does acceptance.  The aim of our projects is to shine a light on some of these conditions and also highlight that just because a person has a disability it should not be all that people see.  We want to introduce the person behind the condition.

We introduce children and adults who have disabilities and rare conditions, through a series of high profile exhibitions, an online gallery, social media and press articles. 

collaboration

By working with support organisations, health boards, employers and a whole host of other organisations we aim to change social attitudes towards those affected by disabilities and rare diseases. We are happy to loan our exhibitions to interested parties and work alongside partners who share our objectives.