‘Journey of Hope’ is an award-winning short film offering a glimpse into the lives of families where children have received a rare genomic diagnosis.
In a world where labels and diagnosis are often framed negatively, this film highlights the reality of both the search for a diagnosis and the impact of the diagnostic moment. Above all else, it compels us to think about the power of genetic diagnosis to reframe how we view our relationships, how we understand each other and most significantly, how a different kind of ‘hope’ is possible.
View the Exhibition
Watch the Films
Award-winning Short Film: Journey of Hope
Journey of Hope is also available with subtitles in various languages. Click the links to be taken to the specific translation.
Spanish (Español) Dutch (Nederlands) German (Deutsch) French (Français)
Journey of Hope Trailer
Journey of Hope: Maja’s Story (Polish)
Meet the Families
Iggy
“It’s been a journey but I am absolutely determined for our journey to be a happy one and for his life to be happy.”
Click here to find out more about Iggy and his family and to watch an interview with his parents.
How you can share
You are not alone. #JourneyofHope
Help us make a difference by showing people they are not alone on their rare disease journey. Let’s start the conversation about the importance of support for those affected by rare disease. you could share your loved one’s photo, a video or just a few words about them.
Post your words / picture / video onto your own Facebook or Instagram profile/page with the hashtag #JourneyofHope and tag @samebutdifferentcic @illuminainc.
Tweet your words / picture /video onto your own Twitter profile with the hashtag #JourneyofHopeand tag @SBDRareProject @illumina
Post your video onto your own Youtube channel with the hashtag #JourneyofHope and email the video link to enquiries@samebutdifferentcic.org.uk.