Show you care about rare
Same but Different asks organisations to commit to five industry actions, by signing the Rare Aware Charter, to create a supportive working environment for employees who either have a rare disease themselves or a close family member affected.
Being diagnosed with or having a close family member diagnosed with a rare disease can have a huge impact on families. Knowing they have the support of their employer will make a huge difference. With 1 in 17 people affected by rare disease in the UK, it is important that organisations are willing to make this commitment.
Mark Isherwood, the Welsh Conservative Assembly Member for North Wales said “I commend ‘Same but Different’ for their fantastic work raising awareness of disability and rare diseases, welcome this launch, and urge employers to sign up to the Rare Aware Charter and become Rare Aware Employers.
Greater understanding amongst employers and colleagues of the unique needs of employees who are affected by or care for a family member with a rare disease will help to reduce isolation, counteract prejudice, improve lives and promote organisational success.”
DOWNLOAD THE CHARTER HERE. To SIGN UP, PLEASE EMAIL YOUR SIGNED CHARTER TO ENQUIRIES@SAMebutdifferentcic.org.uk
How you can share
Post your words / picture / video onto your own Facebook profile/page with the hashtag #RareAwareCharter and tag ‘@samebutdifferentcic‘.
Post your picture / video onto your own Instagram profile/page with the hashtag #RareAwareCharter and tag ‘@samebutdifferentcic‘.
Tweet your words / picture /video onto your own Twitter profile with the hashtag #RareAwareCharter and tag ‘@SBDRareProject‘.
Post your video onto your own Youtube channel with the hashtag #RareAwareCharter
and email the video link to firstname.lastname@example.org.
If your organisation would like to fundraise on behalf of Same but Different, please contact us. Your donation will help us provide the support that families need when they are affected by rare disease. We are the only organisation in the UK who will provide a Rare Navigator service to ALL families affected by rare disease. Unfortunately, not all conditions have a support organisation and with this service we will ensure everyone can find the support and care they need, when they need it.