Blog posts for Same but Different — Same but Different

Jacob - X-linked Hypohidrotic Ectodermal Dysplasia

Jacob - X-linked Hypohidrotic Ectodermal Dysplasia

Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Ryley - Cystinosis

Ryley - Cystinosis

Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Lucy

Lucy

Ceridwen HughesApril 2, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Ryan

Ryan

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comment

Megan

Megan

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Sebastian

Sebastian

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Katie-Ann

Katie-Ann

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Thomas

Thomas

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Arlo

Arlo

Ceridwen HughesFebruary 20, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comments

Amy - Cockayne Syndrome

Amy - Cockayne Syndrome

Ceridwen HughesNovember 25, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Charlie - MECP2 Duplication Syndrome

Charlie - MECP2 Duplication Syndrome

Ceridwen HughesOctober 30, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Charlie - Immune thrombocytopenic purpura (ITP)

Charlie - Immune thrombocytopenic purpura (ITP)

Ceridwen HughesSeptember 27, 2018Ceridwen Hughes, Rare Project, ITP, Charlie, Immune thrombocytopenia Comments

Poppy and Ffion - Marfan Syndrome

Poppy and Ffion - Marfan Syndrome

Ceridwen HughesSeptember 9, 2018Ceridwen Hughes, Rare Project, Marfan syndrome, Poppy and Ffion 2 Comments

Phoebe - Ehlers Danlos Syndrome

Phoebe - Ehlers Danlos Syndrome

Ceridwen HughesAugust 11, 2018Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, sensory issues, sleep disorder, non-verbal, severe learning disability, PhoebeComment

Jake - Angelman Syndrome

Jake - Angelman Syndrome

Ceridwen HughesJuly 10, 2018angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability, Jake 2Comment

Jenson

Jenson

Ceridwen HughesJuly 10, 2018jensonComment

Sabrina and Carson

Sabrina and Carson

Ceridwen HughesJuly 10, 2018Carson and SabrinaComment

Izzy

Izzy

Ceridwen HughesJuly 1, 2018Izzy Comment

Barbara

Barbara

Ceridwen HughesJune 26, 2018Barbara Comment

Eddie

Eddie

Ceridwen HughesJune 26, 2018eddieComment