rare disease — Blog posts for Same but Different — Same but Different

Posts tagged rare disease

Jacob - X-linked Hypohidrotic Ectodermal Dysplasia

Jacob - X-linked Hypohidrotic Ectodermal Dysplasia

Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Ryley - Cystinosis

Ryley - Cystinosis

Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Lucy

Lucy

Ceridwen HughesApril 2, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Ryan

Ryan

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comment

Megan

Megan

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Sebastian

Sebastian

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Katie-Ann

Katie-Ann

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Thomas

Thomas

Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment

Arlo

Arlo

Ceridwen HughesFebruary 20, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comments

Amy - Cockayne Syndrome

Amy - Cockayne Syndrome

Ceridwen HughesNovember 25, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Charlie - MECP2 Duplication Syndrome

Charlie - MECP2 Duplication Syndrome

Ceridwen HughesOctober 30, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment

Phoebe - Ehlers Danlos Syndrome

Phoebe - Ehlers Danlos Syndrome

Ceridwen HughesAugust 11, 2018Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, sensory issues, sleep disorder, non-verbal, severe learning disability, PhoebeComment

Jake - Angelman Syndrome

Jake - Angelman Syndrome

Ceridwen HughesJuly 10, 2018angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability, Jake 2Comment

Rare Beauty - Reverend Paul Nash

Ceridwen HughesFebruary 11, 2017Rare Beauty, rare diseaseComment

Poppy

Ceridwen HughesJune 27, 2016Rare Project, rare disease, Ceridwen Hughes, Marfan syndrome, same but differentComment

Barbara

Barbara

Ceridwen HughesMay 23, 2016same but different, Rare Project, rare disease, Ceridwen Hughes, MS, Multiple sclerosisComment

Zakiyyah

Ceridwen HughesMay 10, 2016Rare Project, rare disease, Same but Different, Ceridwen Hughes, Tyrosinaemia, inherited metabolic disease Comments

Emily

Emily

Ceridwen HughesMay 3, 2016Ceridwen Hughes, Same but Different, Russell Silver Syndrome, Rare Project, rare disease Comment

Hannah

Hannah

Ceridwen HughesApril 15, 2016Ceridwen Hughes, rare disease, Rare Project, Same but Different, Cornelia de Lange syndrome Comment

Noah & Freddie

Noah & Freddie

Ceridwen HughesApril 1, 2016Noah & Freddie, Same but Different, Ceridwen Hughes, rare disease, Rare Project, x-linked periventricular nodule heteropia, epilepsy Comments